Cristina Bolzonella - President
The first international conference on the EEC syndrome, with major Italian and international experts.
The RAREDUCANDO project envisages the awareness of the children about rare diseases. What are rare diseases? What to do if you have a rare disease? What is E.E.C syndrome? Why is scientific research important? Why do we talk about prevention and early detection? What are the safeguards for a person with a rare disease? All questions to which we try to give an answerRead further
Service Center for Rare Diseases
The objective is to make the CMRS a concrete point of reference for people with rare diseases, supporting the social emergency thanks to motivated operators. Support us ...Read further
Stammi Vicino Project
Podere Sant Agata
There is a place where children with rare diseases are becoming children again. A space surrounded by nature specially designed to accommodate for holiday periods the families of sick children. We also need your help ...Read further