This website aims to provide useful informations to those who have loved ones affected by EEC syndrome, to link families to share experiences, provide guidance to the Centers of Excellence and to national and international reference.

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Rare diseases!
There is nothing rare when you know them!
THE INTERNATIONAL EEC SYNDROME ASSOCIATION-ONLUS!
To have useful informations, to bring families together.
To share experiences and outfinding special cure centers.
From Italy to the world, made for talking with us about you!